Gun Dolva. Carol Bower. We want our child, but don't want her to have Down Syndrome Gun Dolva and Rodney Potter have taken advantag 'We mourn the death of the child we had assumed I had given birth to, yet dearly love the baby we have. Gun Dolva and Rodney Potter have taken advantage of available services and programmes, and their own imaginations, to devise stimulating activities to assist her to develop to her full potential.
They aim to provide her with every opportunity to fully participate in the community. This is the account of Karina's first six years, as told to Cheryl Rogers. Karina Has Down Syndrome is a valuable resource for the families of Down Syndrome children, teachers and disability service workers. Get A Copy.
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To ask other readers questions about Karina Has Down Syndrome , please sign up. Be the first to ask a question about Karina Has Down Syndrome. Lists with This Book. This book is not yet featured on Listopia. Community Reviews. Showing Average rating 2. Rating details. More filters. Sort order. Aug 03, Lisa rated it it was ok. I will say right off the bat that this book was a huge disappointment. I was expecting a pretty substantial hardcover memoir for that, but in reality it's a very thin paperback, just over pages, that I finished in a couple of hours I guess I should have paid more attention to the product description on Amazon.
I was initially intrigued by the book because an excerpt I read online indicated that Karina, the child with Down synd I will say right off the bat that this book was a huge disappointment. I was initially intrigued by the book because an excerpt I read online indicated that Karina, the child with Down syndrome who is the subject of the book, was born at home two weeks before her due date.
Since this was how Finn's life began exactly, I felt destined to read this book. Children may also present later in life with severe constipation.
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If an infant has not stooled in the first few days, a physician might consider getting an X-ray. However, a definitive diagnosis is made by a rectal biopsy removal of a small piece of rectal tissue for examination under the microscope. The treatment involves surgically removing the portion of colon that does not function properly. Usually this occurs because the duodenum developed differently during the fetal period.
This can also occur when the pancreas, an organ that helps the body digest food, inappropriately wraps around the duodenum and occludes it. The end result is that digested food cannot pass through the duodenum; surgery is curative.
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With this condition, food inappropriately enters the wind pipe and the lungs. Surgical correction is curative. Babies with Down syndrome oftentimes have low muscle tone hypotonia and sometimes have trouble forming a latch to breastfeed.
However, with the help of lactation specialists, many mothers are able to provide all of the known benefits of breastfeeding to their baby with Down syndrome. Many babies with and without Down syndrome have GERD; for some babies, however, the severity of symptoms warrant special attention. In babies, reflux is typically expressed as intense back arching and crying during feeds.
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GERD typically results when the muscular ring at the end of the esophagus becomes relaxed, allowing the stomach contents to track backwards. Medication therapies result in significant improvements for most individuals. In certain cases, a consultation with a GI specialist might be helpful as additional testing can be done.
People with Down syndrome can be constipated for all of the same reasons that people without Down syndrome become constipated—poor diet and lack of exercise, among many reasons.
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However, people with Down syndrome are also prone to three conditions that can result in constipation:. This can be diagnosed with a simple blood test and treated with synthetic thyroid hormone. If none of the above three conditions explain the constipation, caregivers and physicians should work together to explore safe laxative medications. In certain occasions where the cause of constipation might be due to behavioral concerns, working with a developmental-behavioral specialist could also be helpful.
Celiac disease is a condition where the body is unable to properly digest barley, rye, and wheat products, causing damage to the lining of the intestine and preventing the absorption of certain nutrients. As the condition can range from mild to severe, the symptoms can also vary.
Possible symptoms include difficulty gaining weight, diarrhea, vomiting, constipation, nutritional deficiencies and general irritability or behavior changes. An initial diagnosis can be made through a simple blood test, but a definitive test requires a special procedure from a GI specialist. Because of this high percentage, all infants with Down syndrome between the ages of 2 and 3 should be screened for Celiac disease with the simple blood test. In addition, doctors should consider screening tests for adults with Down syndrome, especially when there is weight loss, poor nutrition or persistant changes in bowel habits.
Left untreated, Celiac disease can result in malnutrition, decreased growth, and, in rare cases, intestinal cancer lymphoma. There have not been any large-scale studies quantifying the percentage of people with Down syndrome who are either overweight or clinically obese. However, most families and clinicians would agree that weight problems are common.
Related Karina Has Down Syndrome: One Familys Account of the Early Years with a Child who has Special Needs
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